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Where to go after a dementia diagnosis...

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Knowing where to go and what support might be available after a dementia diagnosis can be difficult. We’ve put together a list of resources, information and advice that you might find useful.  

Coping with a dementia diagnosis 
Veronika Ambrozova from the University of St Andrews has created a handbook that aims to help everyone cope with a dementia diagnosis, whether you’re a patient or someone supporting a loved one. The guide is interactive with links to further support and information, videos and contact details.  

Caring for someone with dementia from a distance 
If your loved one has recently been diagnosed with dementia, they might still be living in their own home and so caring and supporting for someone from the distance of your own home, wherever that might be, can be difficult. Health Talk speak to carers who have experience of supporting their relatives from afar about their experiences.  

The Alzheimer’s Society also have an online resource for carers with information and advice if you will be taking on a caring role in your loved one’s life. Visit the resource.  

Adaptions around the home  
Adaptions around the home can help your loved one stay at home for longer by supporting them to do everyday tasks. From supportive technology to grab rails to signs around the house explaining where different things are, there are a range of things that can support a loved one living with dementia.  

Did you know that people living with dementia can find it hard to distinguish between colours? Ensuring high colour contrast between items around the house can really help. Light switches are often therefore tricky to see as they’re a similar colour to the wall, getting coloured light switches can help ensure the switch stands out and is easy to locate.  

Explaining dementia to children and young people 
Knowing what to tell children or young people that a loved one has been diagnosed with dementia is hard. To support the conversation and help children and young people understand, Alzhemiher’s UK have developed a Dementia Explained handbook with interactive activities and information aimed at young kids, juniors and teens. There is also a Memory Board which encourages people to share memories and experiences online using words, pictures or videos.  

Visit the Dementia Handbook.   

The internet is full of lots of information and advice, including blogs where people share their own experiences of living with or caring for someone with dementia. These blogs can help you understand what might happen and help you realise you’re not alone. Just a sample of some of the blogs that you might be interested in are:  

  • Let’s talk about dementia – run by Alzheimer's Scotland.  
  • Dementia Diaries – a website that brings together the experiences of 28 people who are living with dementia.  
  • D4Dementia – a blog written by Beth who is a campaigner and consultant and who shares her experience of her father living with vascular dementia.  
  • Maud and Mum’s blog – a personal blog written by Maud about supporting her mother in law.  

Do you have any other blogs or resources that you find useful? Share them in the comments below.  

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